I’m a little tired right now. Just got out of the gym. I’ve been up since 4am. It’s hard for me to get back to sleep sometimes once I wake up. I have some Folgers K-Cups in the pantry if you need some.
I’ll wait a minute…
Now, to be honest, I wasn’t expecting anyone to come by this weekend. With the Decatur Book Featival and DragonCon, I was hoping to have that time with my family. Unfortunately, there’s work to be done. But while I have a moment to talk, I want to discuss something serious.
I really don’t talk a whole lot about my family on this blog. As much as I want you guys to know the real me, I’m pretty protective when it comes to family. But this is something I feel needs to be addressed.
Over the last year, we’ve been concerned about our son, Jaxon. He hasn’t said a single word. He’s been going to speech therapy since January to get him going. Last week, we took him to a psychologist to see if there was something more. Turns out, there is. He’s on the autistic spectrum.
To us, it wasn’t a surprise. There were signs that he might have been besides being non-verbal for his age. But this evaluation we had confirmed it. I have to admit that I’m a little devastated. Outside, I thought he might be a late bloomer, like I was. But inside, I had a feeling. And nine times out of ten, your instinct is usually right.
The thing that’s been hard is the criticism and the ignorant comments. Some people say that we’re speaking for him. Some say that he’s choosing not to speak. Believe me when I tell you that if he was able to, getting him to quiet down would be downright impossible. On the flip side, we’ve received a ton of support. We know parents of autistic kids. And we’ve been doing research so that we can answer questions. Like anything else, there’s no way to know everything about autism because every case is different. And we’re getting help for him. We’re starting him on occupational therapy, as well as continuing speech therapy. There are some special programs we’re investigating to further help him achieve some semblance of “normality.”
Not that we consider it research, but we found a show on Netflix called “Atypical.” It’s a drama/comedy told from an autistic teen’s point-of-view as he and his family balance the struggles of their reality with their wants and desires. It has some humorous moments, and like any other show, some things come off as overdramatic. But it seems like the writers researched the matter thoroughly. The importance of routines. Ensuring certain needs are met. The feeling of wanting to live independent lives. The struggles of loved ones. The lexicon of support groups. I feel like this show did a superb job of dealing (Personal note: I hope they make more episodes.)
So, this week has been about coming to terms with this diagnosis. The support has been flowing. And we will continue to learn more about this reality and how to help him.
I’m sorry if I’be been a downer today. It’s been a lot to process. But I want to hear how your week has been. Feel free to post in the comments.
Until next time, take care…